Time spent managing disease, annual testing predict satisfaction in coeliac disease patients
A recent survey has shown that coeliac disease (CD) care is satisfactory for a majority of patients who report higher approval when they feel physicians spend time caring for their CD needs and when they receive annual CD-antibody testing.
“On the basis of our study, these factors are more important than disease severity, seeing a CD specialist, and quality of life in determining patient satisfaction with CD care,” the authors said.
Of the 387 individuals (22 percent) who completed the survey, 229 met the inclusion criteria of biopsy-proven CD. With regard to their CD care, a total of 79 participants (34.5 percent) reported being “very satisfied,” 82 (35.8 percent) “satisfied,” 46 (20.1 percent) “neutral,” 14 (6.1 percent) “dissatisfied,” and eight (3.5 percent) “very dissatisfied.”
Multivariable analysis revealed that physicians spending ample time managing CD needs of patients (p=0.013) and having CD-antibody levels monitored every year positively predicted patient satisfaction. On the other hand, symptom severity (p=0.268), quality of life (p=0.13), and following with a CD specialist (p=0.139) did not correlate with patient satisfaction.
To assess how satisfied patients were with their CD care and to determine factors influencing satisfaction, the authors distributed an online questionnaire to adults receiving programmatic updates from a CD referral centre. The survey focused on aspects of CD care and used disease-specific validated instruments to measure quality of life and dietary adherence.
The authors also conducted univariable and multivariable analyses with the use of satisfaction as a binary outcome comparing grouped “satisfied” and “very satisfied” respondents to “neutral,” “dissatisfied,” and “very dissatisfied” respondents.