systemic%20lupus%20erythematosus%20(pediatric)
SYSTEMIC LUPUS ERYTHEMATOSUS (PEDIATRIC)
Systemic lupus erythematosus (SLE) is a chronic, multisystem, inflammatory, autoimmune disorder characterized by formation of autoantibodies directed against self-antigens and immune-complex formation.
Clinical presentation varies in different patients and the disease activity varies over time in a single patient. Childhood-onset SLE has a greater disease severity and earlier disease damage than in adults with SLE.

Systemic%20lupus%20erythematosus%20(pediatric) Patient Education

Patient/Parent Education

  • Patients should be provided with information, counseling and support
  • Involve all the family members in counseling regarding the disease
    • Family must have a thorough understanding of the disease, its potential severity and complications of the disease and treatment
  • Patient must learn to cope and monitor the disease when he or she is at the right age
    • He or she should be able to distinguish signs and symptoms that may precede a disease flare and consult with the physician immediately
    • Educate all patients regarding possible complications from unplanned pregnancy, poor compliance, recreational drug use and infection
  • Advise patients to join other SLE patients in support groups
  • Patients must be advised to refrain from sunbathing, wear clothing with long sleeves and use umbrella or sunscreen lotion to prevent exacerbation of dermatologic symptoms
    • Use sunscreen with at least a sun-protection factor (SPF) of 15-30 to prevent dermal or systemic disease flares upon exposure to ultraviolet light 
  • Patients must have appropriate diet to prevent obesity, osteoporosis and dyslipidemia
  • Patients on corticosteroids should have a no-added-salt, low-fat and calcium-sufficient diet  
    • Supplementation with calcium and vitamin D is recommended
  • Advise patients to seek medical help when they have fever
    • Exposure to immunosuppressive drugs used in SLE may predispose patients to infection
  • Encourage patients to maintain a normal lifestyle
    • Regular exercise to maintain appropriate weight and bone density
    • Advise patients that fatigue and stress are associated with disease flares
    • Smoking cessation is recommended
  • Immunization should be updated for all patients
    • Patients should have appropriate immunizations (ie influenza, pneumococcal)
    • Patients with SLE are often complement deficient and are at risk for encapsulated organisms
  • Antibiotic prophylaxis for all dental, genitourinary and other invasive procedures for patients at high risk of infections (eg patients with valvular abnormalities, on immunosuppressive therapy) 
  • Patients should routinely undergo gynecologic assessments, dental care and ophthalmologic exam especially for patients taking corticosteroids and Hydroxychloroquine
  • Psychological support may also be necessary
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